The Fatigue has been extremely high and just falling out of bed has been an enormous struggle.
Showering has been so difficult I have again resorted back to using my shower chair...the standing and effort taken to wash my body is enormous...and just so exhausting.....my arms have felt like concrete weights and by the time I step out of the shower....it's time to rest....some days I don't dry myself and just prey the heater does it quickly for me....my arms and legs feel like large old rusy anchors....slidding deeper down into the depths as I try sometimes to lightly brush my body with my towell after showering.
So several weeks have passed since last blogging....Things have been a bigger challenge than the normal...
I have since been refered by my neurologist to a Dr who practices Accupuncture.
So that was an interesting experience,I had to provide him with a written response to heaps of questions in relation to my health...after seven pages later....
Upon my first visit he said after reading my document he thought he should refer me to a vet....to get put down out of my misery....
Interesting....given I only provide factual information with nothing emotive in the content....
Anyway....that was my welcome...I am typically freaked out by injections so I would have to say I was a little anxious.
He only put about ten in....the only uncomfortable one was the inside of my wrist,although I was a little concerned when he was going to place one in my heart surgery scar....as he said...Stay very still...this is sitting at the top of your aorta and can pierce it....so.....lay still I did....but the overall experience with needles did not hurt...but at times felt a little strange at the point but not painfull.
My pain has been incredibly high all week....so I guess only time will tell.
It's been a week since first treatment and I have noticed a slight change with fatigue decreasing slightly.
Things have now become so difficult I have made the decision to reduce my working hours...in hope this will allow some rest and provide some energy for myself and my family.I feel like I need to have some time when I can do something I would like to do....to improve my quality of life...i have been feeling as though the job that I love so much...... Infact Has actually taken it all from me...after I return home I don't even have the stamina to cook tea or function properly....its difficult to even engage in conversation.
I plan to continue with Accupuncture At this stage and am following up with my pain specialist about the possibility of accessing the "Myers Cocktail"...I have read it is practiced in other countries but am not sure about here so I have made an appointment with him for July and have sent him some links to information with research /trial data.The side effects look minimum and it seems like there are some positive results....although it is not clear how often you would need to have the treatment that I imagine would be an individual thing.
Anyway....I feel with the everyday uncertainly of how I will manage my sunshine that helps to guide me is my will to continue to research....and hope that there will eventually be something that will be effective for me. My hope at this stage is the Accupuncture....and then my other hope is in my great pain specialist...who is allways open and receptive to open discussion and ideas ..so I hope that he knows of and will approve of the "Myers Cocktail" treatment....
This is my near future sunshine...Accupuncture.....Myers Cocktail..... And the ever knowledgeable DR. Handsome Khan... They are my possible rays of hope.
F is for.....Fibromyalgia...
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