Last night was horrific... I was up and down all night with what I call my bone pain in my top part of my legs and upper part of arms...Fibro friend sitting in my chest and jaw...having a real party of a time...
Was up and down warming the hotti up to wrap up my legs for just a little relief... It helped a tiny bit...well it provided distraction in the night anyway....
When my eyes opened again thizmorning I was glad to see the light flood in...All be it I could still feel some pain...I knew the world would evolve around me now and I could somehow try to join in...
My weariness is showing and I've already be growled at for being surly....will have to try to keep my self under wraps a little better...just want to cry under the covers for a while!! Can't dwell on it any longer....push this shell of a so called body out of bed and think of what to do on this Sunday morning....
My mind is somewhat blank and cross at myself and this body and the world today!!
Will keep my my mouth closed as best as I can this morning....feeling very sensitive...will probably cry...
Good place to start....a hot shower......wash it all away.....it's nice....refreshing but takes so much energy...pain and tolerance.....
Decided to be brave and invite hubby to come and sit out in the garden with me....
As I thought sensitive me....tears.....but all good needed to be heard.....and we both needed to vent...
Living with an invisible disease is very difficult,draining,exhausting and that's for all the family members....
It's good to have the opportunity to make the invisible visible if only by having a discussion....with loved ones...a big thank to to all of my loved ones who take me to appointments..sit by my hospital bed.....time after time......listen to me wing...wine...talk....cry....vent....and are there to offer their valuable ideas and suggestions...and it doesn't matter if I'm not ready to embrace them....im still appreciate of everything that you are offering and saying ...and the time and energies that you are all putting in with me... Thanks everyone..you all know who you are...Love you all so much xxxand can't believe at times your all so tolerable..... So really do appreciate that....you'll never know how much really.....except through my words if you should happen to read them....
See where the next week takes me.....
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