I've been really fortunate and actually had a little sleep during the night...
I awoke to immediently know it's either going to be again really hot....or the weather has changed....
All I did was open my eyes...upon lying still I could feel the intense pain and firy inferno in both of my feet...both arms feel like lead weights and each elbow area is very painful...shoulderblades pain is already peaking around a hospital scale of a 7....and all I've done is just moved my eye muscles for the day....and its early on a Sunday morning...it's lovely and quiet in my home...im relaxed cause I've actually slept a little....and this is the beginning of my new day...
My unwanted visitor sensed a change in weather very early thismorning and has arrived to stay for a Sunday visit I think....
As I look out the Window its grey and it's cooler looking and it makes me feel better knowing its going to cool down some what this coming week,after the past weeks events...
Once the barametic pressure settles so will my unwanted visitor....
Anyway...I was considering what my options were to begin the day with...I thought I could massage my feet with some elmore oil..but then that would use up a spoon or two of mine...If any of you know the spoon theory....(I will come back to that)and will leave me with less usage in my hands....which when you are home alone...is not a good option....holding....pouring...tying...cutting..would not be an option if I was to massage my own feet....so....I might soak them in Epsom salts, then wrap them in a hot pack and see if that reduces the pain and awful sensations enough to walk around and be able to enjoy my day....
I will have to hope the break meds help with the rest of the pain...and im relaxing with the cat and listening to some Ed Sheeran good relaxation...or distraction method....
For those that are reading and have Fibro...and want to explain what it's like to family and friends...or other loving people taking the time to understand by reading this blog...this spoon theory written by this incredible women who actually doesn't have Fibro but Lupus...has come up with this theory...when I read it I cried...it was so exactly what it is truly like...
Each and every day!!
Please read its great...and sad...but it makes sense....
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
So....not long....and I may have previously mentioned that I will be finally undergoing my muscle and nerve testing.... In hope for some answers... Things have been progressively been deteriorating...and in silence....Shhhh.... so I may not like the outcome but I am now at a place where I am as prepared as I can be for what will be.... I need now to be able to have the medical professional. Tackle whatever is actually happening alongside my fibro...my pain specialist has mentioned several times it is very difficult to treat whilst we don't know what else is going on...
I'm gearing up for my testing on the 24th...so of coarse will keep you all posted...and hope for some type of progress....
I have one thing on my side.... Love and support....it will not only get me to the appointment but pull me....or possibly drag me back out the other end....dependant on results....good or bad I suppose....people are amazing....and I think they are gifted with love, strength and compassion....and I can say amongst the chaos of this condition...
The sadness it brings...the unpredictability....and relentlessness....
Love is there....and amongst everything sad and bitter in my life that this condition has brought with it...
I have love around me.....
A little sprinkled here....and a little sprinkled there....just like magic fairy dust....it's what keeps me going....even if the fairy dust is via phone link....sms....
Hugs and kisses to my special little group of unique people that put up with my daily shit...your all amazing...and I love you....even ...I know some of you don't read this....but that's okay too....it's pretty sad...particular when you live it.
F is for....Future .....
Hi what happened when you had ketamine infusions? Did they help at all ? I was thinking of trying it ?
ReplyDeleteHi Annie,
ReplyDeleteI had a couple of weeks of relief and then everything reverted back to how it is now....it's the worst it has ever been now.Unfortunatly it didn't work for me and it cost all up about $13,000 but we are in Australia.So I'm pretty sadneded by it all as you can imagine....
Thanks for commenting...it's great! Please take care yourself....gentle hugs to youxx
This comment has been removed by the author.
ReplyDelete