May - 6 weeks after treatment....

Well I don't even know where to begin...so much has occurred within the past 6 weeks....

Firstly to recap...I was recently admitted for a different treatment for my Fibro pain management.
I was really lucky to be referred from my gorgeous pain specialist...to a very caring and dedicated and very experienced Neurologist.
Upon visiting him for the very first time he even appeared horrified of the pain that I endure each day...I was just greatful for his empathy and prompt action.I was then hospitalized within a couple of days.

If you read the previous blogs you will see I had several combinations of IV drips and oral meds.
Upon being discharged this lovely man suggested he had felt the treatment didnot work.....I pretty much begged him to trial the oral meds for a bit....just to see...and to give myself that possible ray of hope of some recovery.

I returned home with script in hand....Hubby went to the pharmacy and soon returned with boxes of meds half filling a shopping bag....it was at this stage I began feeling disheartened and wondered why and what I was doing....I hate all that seems to come my way with any medications...and their side effects....and angst of taking such potent meds...
I began the task of the new medication regime which consisted of the following....Long list....
So...half hr before break...nexium....then after breakfast...400mg of epilem,2panadol oesteo,1000mg naproxen, At lunch time another 2 panadol oesteo...evening before bed...400mg epilem again,25phenergan,10endep...and again 2panadol oesteo.
This is with my daily heart medication as well....this is what happened next....
The next four days I lay listless....too afraid to move unless otherwise was to the toilet...Things were not stable around me....although they were...and its was a feeling I felt that was overwhelming me...with nausea...and an overall feeling that overtook my body,mind and spirit.
There were many tears...as I fought to try to cope with the sensations and the Fibro pain resting also upon my body.My poor hubby wanting to be the brave rescuer....and take me to hospital,due to his own concerns.
It overwhelmed me to the point where day 3 i even said to my hubby....im not strong enough to continue with this new treatment.I felt as though I was weakened to a breaking point and NEARLY stopped the meds.When I awoke day 4 I was a different person....the cloud of billious feelings that had so heavyly consumed me had been lifted.

So here I am approx....6 weeks later...and the following things have changed for me...
Since leaving hospital I have not had pins and needles,nor numbness in my hands...at all....yah!!!!
When I wake first thing...my pain scale without even getting out of bed is now at most amazing...only somewhere around 5 to begin the day....im so excited!!!
It still increase over the. Coarse of the day but hay....I don't wake and begin every single day with excruciating pain throughout my whole body....just bits instead....again....this is a yay....for me....

So I feel that there has been some shift and one of my significant things I was able to do with these changes now on board was....
I made a birthday cake for a friend.....

Pushed by both my new results...strong will...and friendzhip for another erson....I pushed myself.....although I did take breaks...pacing myself every opportunity.... during the process to rest, but was so shocked by the end result.This was the first time in years I was able to stand,use my arms...and hands...to complete such a task.I will admit by the end the pain...which I know as my unwanted visitor had soon arrived and slid in at the top of my body....only to work his way down to the end of my toes....I could barely even stand....and soon fell into a warm bed ....to end the day....

F is for faith....in trialing new things....and taking a huge leap into the unknown....